Table 2 Summarised themes obtained from interviews
Main Themes | Sub Themes |
|---|---|
Previous participation in research | • Lack of knowledge related to requirements • Imposed health system regulations • Impact to business   ○ Time   ○ Consent   ○ Liability |
Willingness | • Acknowledgment of data already being shared  • Consequences due to wrong conclusions:   ○ Litigation   ○ Misinterpretation   ○ Loss of business |
Types of data |  • Agreeable to share de-identified aggregate data  • Non-threatening  • Caution related to business impacts |
Data sharing concerns |  • Organisational   ○ Trust in collecting and storing data   ○ Financial backing   ○ Reputational risk |
Data collection and storage |  • Larger, government agencies garner more trust  • Universities respected for ethics and research protocols |
Understanding |  • Concerns related to lack of transparency, autonomy and sovereignty  • Confidence related to privacy legislation obligations |