Construct | Item # | Initial item | Revised item | Comments from experts |
---|---|---|---|---|
Supported by healthcare providers to understand information | 50 | Healthcare providers have helped us compare information about treatments | Healthcare providers have helped me compare information about treatments | Consider using ‘me’ rather than ‘us’ to avoid confusion |
57 | Healthcare providers have helped me understand the potential side effects of treatments | Healthcare providers have helped us understand the potential side effects of treatments | Consider using ‘me’ rather than ‘us’ to avoid confusion | |
Communication with the care recipient | 58 | After appointments, I discuss the information given by doctors with the person I care for | After appointments, I discuss the information given by healthcare providers with the person I care for | Referring to doctors or all healthcare providers |
Understanding the care recipient | 14 | I understand when to let the person I am caring for do things by themselves in their own time | I understand when to let the person I am caring for do things for themselves in their own time | Perhaps “for themselves” better captures the concept |
30 | I know which everyday activities the person I care for would like to be involved in | I know which everyday activities the person I care for would like to do | Changing “involved in” might improve clarity | |
I know which everyday activities the person I care for can participate in | I know which everyday activities the person I care for can do | Changing “participate in’ to “can do” might improve clarity | ||
Social support | 4 | There is at least one person who understands and supports me | I have at least one person who understands and supports me | Consider changing the stem to follow other items |
12 | I have strong support from at least one family member | I have strong support from at least one family member or friend | Is it necessary to differentiate between family member and friend | |
66 | I have strong support from at least one friend | Not applicable: Subsumed into above item | As above | |
20 | I get plenty of chances to talk to other people who are caring for someone with cancer | I get enough chances to talk to other people who are caring for someone with cancer | Might not need ‘plenty’ | |
44 | I have family or friends who can attend medical appointments with us | I have at least one family member or friend who can attend medical appointments with us | Identifying one person would be adequate |